Data Sharing

As impacted by the Health Insurance Portability and Accountability Act

What kind of data/information are you wanting to obtain or share? When the information is about living people, the HIPAA regulations come into effect.

Before you begin your research project, determine what pieces of information about living people, or their cells or tissues that you will need to include in data you obtain, receive or store.

See the information below in chart form:

Data Sharing Flow Chart

Information from which all of the 18 "identifiers" have been removed.

De-identified information is not subject to HIPAA. Proceed to freely share any de-identified data.

Please note that number 18 opens the possibility to other information, which can sometimes be subjective, and has some implications with respect to research. Please contact the Privacy Officer for assistance in determining category of additional information not clearly named in the list of identifiers.

Data Sharing Request Form

The data sharing request online form should be used for the submission of data-related requests. Upon submission of the form, the Office of Regulatory Compliance will automatically be notified of your request and someone will be in touch with you soon.

Please direct any separate communications regarding data sharing requests/agreement to

HIPAA Contacts

Lori Hopper

HIPAA Privacy Official

Alison Lakin

Signatory Official, Empowered Official Research Integrity Officer